How is it to suffer from chronic fatigue syndrome?

Terrible.Really absolutely terrible.

I currently have so around 2% of the normal amount of energy.I can sit well, so can sit behind the computer, but a lot more than that is not going.

I can’t shower anymore, because I can’t stand that long.I take a bath once a week and a half a fortnight. I never feel rested. I have not been able to work for 20 years. No hobbies outside the door for 15 years. No more cooking since 5 years. Still household for 1 year.

I hate every minute.

I am intelligent, active, enterent, analytical.I could do so much.

And I’m at home to expel my time.Terrible. I hate hate it hate it.

Luckily, there are antidepressants.That muting that and thereby I am my normal tidy self.

If I have no eight lettuce on that abyss next to me, then.Then it does. Then it still seems a lot.

But it is precious little.

Tiring?I have a lot less energy since ten years than before or other people of my age. That’s not pleasant, because you can do much less, mean less to others. Holidays and travel are a visitation and you can no longer do your work, no more as well or only partially, depending on how bad it is.

I don’t mind and luckily I have a partner who does everything to keep the household running, so I can spend the energy I still have on other things.

Maybe there are practical tips and possible solutions, because I have a first interview with the Knowledge Centre for chronic fatigue at the AMC on Tuesday.

For me there is also a positive side to the misery: I love going to my bed and I almost always sleep fantastically.

Edit 21 Jan.2019.


Hm, diagnosis chronic fatigue is asked.Nice people there at the NKCV. Has nothing to do with the diagnosis, because it is completely prototyped.

I am now trying to live a week in anticipation of therapy as much as possible to the guidelines: discipline in daily exercise and day/night Tritme.Does not really help but falls reasonably to do and I don’t feel tired with it either. Two other things tackled: less sugar intake and sleep apnea with such an air pump. The latter was the reason that the therapy of the Knowledge Centre does not yet start chronic fatigue. The number of apneas must be below six per hour. Not surprising is that there is a great deal between the precepts for reducing apnea and combating chronic fatigue. Luckily though, because otherwise I had an ugly dilemma, while I now at the same time both work. Losing weight now, and the world is still smiling. And that’s even easier if you’re less tired.

What drives me further in the right direction are the findings of Hanno arrow of the LUMC on lifestyle diseases and how to prevent them.And of course the meddler and sometimes practical suggestions of Quora users on my answers about gluttony and fatigue. Thanks for that.

In half a year I will honestly tell you how I stand for it.As a 0 measurement: light sleep apnea with an average of seven per hour, in the afternoon at least 2 hours on bed to catch the evening, 110 kilos at 1m78, moving: average half hour walk and quarter exercises (Netherlands in motion).

I am not delusions, because the problem is persistent and has neurological, hormonal and metabolic edges, but the solution is still in behavioural change by myself….

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